Monday, December 8, 2008

My baby isn't perfect...

When you become a parent you look at your children and see the most wonderful and beautiful thing that you could have ever been part of. You count all 10 fingers and toes and think of all the things your child can become. When someone tells you that there is something wrong with your child your perfect little bubble can pop in an instant. That is what happened with us with not one but two of our children. Andrew has been the picture of health most of his life outside of one major bout with a serious strep infection that landed him in the hospital. So when we got pregnant with #2 I figured it would be just as easy. When Cameron was born he was beautiful. Although his birth was the most difficult I still had it pretty easy. During our first diaper change I felt something was a little off and he didn't look the same as his brother did when he was first born. I guess you could call it mother's intuition. When the pediatrician came in and looked him over I brought it up to her. She also felt that he was a little off in size in his genital area. (it gets a little graphic at this point). He just seemed to be a little too small. I know he was a newborn and everything is small but this was just not right to me. So Cameron was subjected to test after test. He still to this day has a scar on his hand from all the times they attempted to draw blood. Finally, the results came back and it was not what we wanted to hear. Cameron was born with calcified non-working testicles. There is no real explanation to how this happened, but it would mean a long road of medications and Cameron will not be able to have children of his own. When he was nine months old he had his only remaining testicle removed. He has no idea about anything that has happened to him. When he gets closer to puberty we will have to sit him down and explain everything to him and he will start on the road of treatment. I am scared to death for when that day comes because I don't want to lose my sweet little boy.Photobucket

Ok so now that I have dealt with that I have this crazy idea that we should try for one more and see if we can get a girl out of the deal. Low and behold on Cameron's first birthday we mad the announcement that we were pregnant again. The pregnancy was tough. I went for the big ultrasound and low and behold my new little miracle was a little girl. I have to say this was the easiest of the three deliveries and her birth was a breeze. We spent our mandatory few days in the hospital and then we went home to learn to handle three kids. Our first night home was the usual. Getting up every couple of hours. One of the times I got up I picked up Lily to feed her and something seemed off. She was doing things that looked strange. I blamed being sleep deprived and left it to the next morning. When we all woke up the same weird things started happening again. She was twitching and her eyes seemed to be rolling into the back of her head. Now I know babies are twitchy little creatures but this was not right at all. I freaked and called my mother who in turn advised me to call my pediatrician who advised me to head straight to the ER. Since she was only 4 days old they took her in right away. I was a mess. I probably cried more on that day then I ever cried before. They weren't sure what was wrong since she looked fine when I brought her in. I felt like they were looking at me as a hysterical mother. They started running a million tests. She too has a scar on her hand from the blood draws and IV's. She even had to have a spinal tap. Finally, she started twitching again in the ER and I was able to show the drs what we had been seeing. She was sent for an MRI and thank goodness that came back clear. Finally, they diagnosed her with seizures. We stayed in the hospital for five days trying to get her regulated on medication so that the seizures would subside and then we were sent home. She only had a few episodes when she was on the medication and miraculously she has been seizure free for over two years and medication free for almost a year. She hasn't had too many residual effects from the seizures, but she does attend speech therapy two times a week. She is generally a happy healthy little girl, but she definitely had a rough start.

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1 comment:

Jenna said...

Patience - I'm sorry for what you have been through/are going through/will go through... but you do have 3 beautiful children who one day will know the value and gift of having you as their Mom. I love your blogs - you are a great writer!!!

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